‘Uncertain future’ for boy, 6 with rare condition ‘doctor had never heard of’

‘Uncertain future’ for boy, 6 with rare condition ‘doctor had never heard of’

Hunter lives in Chelmsford with his parents and younger brother (Picture: Kevin Pilgrim)
A young boy with an exceedingly rare genetic disorder is facing an uncertain future.
You have perhaps never heard of the Okur Chung Neurodevelopmental Syndrome (OCNDS) – neither had the doctor who diagnosed little Hunter Pilgrim.
The six-year-old, who lives with his parents in Chelmsford, Essex, is one of…

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